This is a place-holding site for
Emily Hope Lee

Please visit our website:

Emily was born on July 15, 2005.  Shortly after birth she was diagnosed with a terminal neuromuscular genetic disorder called Spinal Muscular Atrophy (SMA), Type I, or Werdnig-Hoffman Disease. (


Please visit our family website for updates on Emily's condition.  Updates, Prayer Requests, Pictures, and information are a few of the things that you will find there.  Please visit again soon! 

Emily's older sister's site is:

The Lee Family site is

Supported by SMA Support